Myelodysplastic Syndrome

Myelodysplastic Syndrome

Affecting 10,000+ people globally. Let's help Melissa kick its butt.

Updates and Blog

Home

HOME: So, we’ve been home for two weeks now. It’s been a process. Its great being back home but it hasn’t been without some anxiety. Leaving the constant supervision of…

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Coming Home!

We are officially getting kicked out of the hospital tomorrow! They will start the discharge process tomorrow morning and we hope to be out the door by noon and on…

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Ticking away…

Ticking away the moments that make up a dull day… Melissa continues to progress. Her blood counts continue to improve every day. Her WBC which were at low of 0.03…

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Day +15

More great progress on the numbers! WBC nearly doubled again last night and is up from 0.36 to 0.71 and NEUTS up from 0.15 to 0.43. The magic number before…

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Thanks Class!

A huge thanks to all the kids, Mrs. Earnest and Mrs. Terry! Thank you for all the wonderful Valentin’s day cards! These came at the perfect time, and just the…

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Day +14

Melissa continues to progress. Fever has been low to normal the last few days, swelling is getting better and the rash is turning from red to brown which the Dr’s…

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Featured

Visitor Guidelines for Family and Friends

  • Family and friends are encouraged to visit between 1 pm and 9 pm to allow the patient’s health and personal care needs to be most effectively met by health care staff. The number of visitors should take into consideration the patient’s condition, preference, and proximity to other patients.
  • Family waiting rooms and the Bretholtz Center at BWH are available for visitors when they are not able to be in a patient’s room.
  • All visitors must be free of infection or exposure to communicable diseases and will be asked to complete a screening form each day.
  • Children under age 12 are permitted only if they are the siblings, children, or grandchildren of the patients.
  • All visitors must wash their hands with soap and water and wear a mask.
  • Visitors can only bring items made of paper or objects that can be wiped down with antibacterial wipes.
  • Fresh flowers, plants, and fruit baskets are not allowed.
  • Only food items approved by the Dietary Department are permitted.
  • Visitors should not eat or drink in the patient’s room.
  • Visitors should not come to the hospital if they think they have been exposed to an infection, are sick, or have been exposed to chickenpox, especially young children. In general, no young children should visit.
  • Visitors should not handle medical supplies, sit on the bed or the recliner, use the bathroom, or eat in the room.
  • Visitors can bring games, computer games, videos, and CDs.

Home

HOME: So, we’ve been home for two weeks now. It’s been a process. Its great being back home but it hasn’t been without some anxiety. Leaving the constant supervision of nurses 24/7 was difficult at …

Day +15

More great progress on the numbers! WBC nearly doubled again last night and is up from 0.36 to 0.71 and NEUTS up from 0.15 to 0.43. The magic number before they start discussing a release …

Day +14

Melissa continues to progress. Fever has been low to normal the last few days, swelling is getting better and the rash is turning from red to brown which the Dr’s said that means it has …

DAY 6

Last dose of chemo was hooked up around 6am this morning and she was officially off by 9:30am. No more chemo! It will take a few days for the chemo to get out of her …