Myelodysplastic Syndrome

Myelodysplastic Syndrome

Affecting 10,000+ people globally. Let's help Melissa kick its butt.

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Updates and Vlog

Home

HOME: So, we’ve been home for two weeks now. It’s been a process. Its great being back home but it hasn’t been without some anxiety. Leaving the constant supervision of nurses 24/7 was difficult at first. Meliss is on a mountain of medication that is critical to take several times a day, some makes her…

Coming Home!

We are officially getting kicked out of the hospital tomorrow! They will start the discharge process tomorrow morning and we hope to be out the door by noon and on the road for home. It’s been a long beginning to this journey with plenty of ups and downs, but Meliss is kicking ass and excited…

Ticking away…

Ticking away the moments that make up a dull day… Melissa continues to progress. Her blood counts continue to improve every day. Her WBC which were at low of 0.03 last week are up to 2.18 today! Her NUETS levels are at 1.81 which are three times higher than when she was admitted into the…

Day +15

More great progress on the numbers! WBC nearly doubled again last night and is up from 0.36 to 0.71 and NEUTS up from 0.15 to 0.43. The magic number before they start discussing a release date is the NEUTS being above 0.50 for two consecutive days. The neutrophil cells are the white cells that attack…

Thanks Class!

A huge thanks to all the kids, Mrs. Earnest and Mrs. Terry! Thank you for all the wonderful Valentin’s day cards! These came at the perfect time, and just the boost Melissa needed!

Day +14

Melissa continues to progress. Fever has been low to normal the last few days, swelling is getting better and the rash is turning from red to brown which the Dr’s said that means it has hit its peak and is beginning to clear. Mucositis, mouth and throat soars are pretty bad and she’s unable to…

About This Site

This site was put together by Melissa’s family with the hope that we can spread awareness of MDS and how it affects people. By sharing stories, inspiration, and even music playlists, we hope that together we can help Melissa through this challenge and offer support to others as well.

Please consider Sharing a Story or contributing to our Playlist Collab.